So, Penelope’s been having a hard time breathing. The respiratory therapist came in and they ran some tests. Turns out she has Respiratory Sincytial Virus. So my first thought is…of course she does! It wouldn’t be enough for her to ‘just’ have stage 4 cancer. It wouldn’t be enough for her to have stage 4 cancer and paralysis over half of her body. So then, is this going to be enough now? Cancer, paralysis and a respiratory infection while having a hole into her chest cavity and a partially collapsed lung – maybe that would suffice?!?
Pardon me for being a little bit bitter right now…this new infection pushes our ‘outpatient date’ back at least 5-7 days. This is really hard to deal with. It’s just hard. I just want to take my little girl home, snuggle on the couch and watch Elmo’s World. It seems/feels like this is never going to end. Like we’re going to be here forever. We just want to go home.
On top of that, our referral to the Ronald McDonald House was only for a week, so it looks like we’ll be getting booted out of there after tonight. So, no more being able to sleep across the street from the hospital. Too – we’d just moved into a new place 5 days before we were admitted into the hospital. So the house has all kinds of boxes that haven’t been unpacked and I now have to bring two weeks worth of clothes and miscellaneous junk back to the house. Maybe I’ll just start stacking stuff.
I wish I had better news everyone, but – not today.
Since Penelope has this new infection, and we’re on the Cancer Unit, they are now going to transfer our room too. We have to go to the Med/Surg ward so that Penelope won’t infect any of the other kids that are getting chemo and have low immune systems. Just when you think things can’t get any worse…ugh.
OMGosh Aaron.
I’m sorry!! I am working my butt off trying to get help for you guys. I love you. Be strong!! ((HUGS))
~Rhea
I am soo so sorry that she has to go through this….this breaks my heart!!! I will be sending $ next week when we get paid. If there is anything I can do please don’t hesitate to ask. We all love you guys soo much and wish there was more that we can do!!
praying for you all Aaron, and telling everyone we can about Penelope……..asking for prayer and help……..if there is anything we can do or any way we can help……….please call……..
Oh Aaron honey, I just want you kids to know I’m here for you, & for Penny. She is going to come through this. You can call me any time day or night. I love you ur auntie Carol cj. The reason I haven’t been up is I have a cough, & slight infection. But I am there in spirit & in heart.
So sorry you’re going through all of this. Someone posted your website on a message board that I’m on, and I read through and started following your twitter. Your little girl is most definitely in my prayers.
Also- is there anyway you can stay longer at the RMH? I’m sure you’ve already asked. My husband and I actually live and work at a RMH (as resident managers) in ND. It seems silly to me that you can only stay for a week! I guess I haven’t seen/read where you’re from so maybe the bigger city/houses run differently.
Again, your family is in our prayers in ND.
hello there i have been praying for Penelope & telling my friends about her you are in my prayers always love you lots love kyla
Praying for you all!
At five months old, my second baby was very ill, hospitalized and we were told there was nothing they could do. At seven months old, we were told to take him home and make him comfortable. We couldn’t accept what they were telling us or give up – so, we took him to another hospital. They created a miracle and our little boy recovered. We are praying for all of you. Stay strong and hang in there for people care and are praying for you. Meg in Pa.
A prayer for you:
God please bring healing to Penelope stay by her side and comfort her through this trying time. And please wrap your arms around her parents, comfort them with the knowledge that we are praying for them, and give them peace with a sense of your presence and the strength to make it through these trying times. In Jesus name. Amen.