Not an hour after I posted my last post…Penelope’s IV went bad. Same story, OCCLUDED PATIENT SIDE alarm, no kinks anywhere, wouldn’t flush, came out completely bent.
It came out and luckily the echo medication for sedation was oral so we didn’t need the IV right then. They gave her the sedation medication dose for her weight and of course it wasn’t enough for my tough cookie. Penelope starts getting a little bit loopy and wants to move all around the crib so I had to make sure she didn’t bonk her head anywhere. It reminds me of trying to sedate a large animal, like an elephant, wobbling back and forth and fighting the sedation. They gave her another half dose, she fought that again and I actually had to swaddle her and rock her, with all the fight she had still, until she finally crashed. They did the echo, I got a shower and rushed back because the CHET team was coming to insert the IV.
So the CHET team got called to a trauma and we had to wait a while before they would come. Penelope woke up, of course, so when they came she was full of it. They tried 3 times with no luck. She fought and cried and every once in a while got distracted by the bubbles the Child Life Specialist, Andi, was blowing for her. Now we wait. The next step is the anesthesiologist but since they are in the OR all day we just have to wait until they call us. Once that happens we go straight to the PACU for another poke, hopefully one that sticks.






What an amazing little fighter you have there! Such spunk and a priceless smile, after sedation… I continue to be amazed by your precious Penelope, so sorry for all the pokes and prods this poor little baby has to endure. Darn those IV’s…I continue to pray for you all and watch for updates.
Well, this officially bums us out! We’re praying for you guys to get out tomorrow and enjoy the weekend. Pretty Penny will kick butt, I know it!
Things can only start looking up from the past few posts.
I hope all the IV problems are solved- and soon! Even after going through so much, it’s amazing to see a smile on Penelope’s face. She is a gorgeous fighter.
Thinking of you all, every day.
Thinking of you all & hoping things are ‘quieted down’ a bit since the last post.
My prayers go out to you daily & I hope this weekend brings you a little more rest,
& some happy gatherings with family & friends!!
STAY STRONG!! LOVE TO YOU!
Sweet Penny! We pray for you every day! thanks for all the updates i check them weekly to see how she is progressing! Hugs and Kisses little sweet pea stay happy and strong like you are precious one!
Hi Carina~~ Thank you for the updates on Penny. Maddie asks about her quite often. You & your husband have such an enormous amount of strength that is to be admired. We pray for you & your family all the time. As a nurse in Hem/Onc, I know what you are going through, it’s tough….extremely tough. You are such a strong mommy and Penny… WOW, what an amazing little girl. You are all in our hearts, thoughts & prayers.
She looks so amazing!!! I miss her so much!!! Hope all is going well, call you guys soon XOXOXOXO