Last night I spent the night at the hospital and let Carina get some well needed rest and a little time with her friends. We don’t get much alone time together nowadays , but I really think it’s important to still live life while all of this is going on. Even if it’s separately for the moment, I think it’s still important to remember that you’re a regular person – not just the parent of a very sick child. Otherwise, it makes the situation that much more of a problem. If you can’t get out, at least every now and again, and have a little bit of fun and get a good nights sleep then, in my opinion, you’re just compounding the problem. You’re going to have a sick baby (still) and a burnt out Mom – which is definitely not good. Anyhow, Penelope and I had a fun night – we watched movies and ate goldfish and gave each other ‘big hugs’ (she wraps her arms around your neck and pats you on the back when you say big hugs).
Then the morning came – we got ready and headed down to the cafeteria, which opens at 630 am (she was up at 545am). BUT – on the weekends it doesn’t open ’til 8am! Ahhh! I needed coffee or an energy drink or something! Too, if the little one doesn’t have some cheerios shortly after she wakes up she gets a little grumpy herself. So, we just walked around for a while trying to kill some time. Penelope was riding in her little wagon and was trailing her IV stand behind her. One of the nurses had showed us a cool trick where you set the back end of the wagon on the front of the IV stand and you can tow both at the same time. It works really well…unless you hit a bump…
We’re heading down the hall towards the elevator and the flooring switches from linoleum to carpet, not a problem though, I took it slow and deliberate, but that didn’t matter. The IV stand sticks on the ledge that transitions linoleum to carpet – the wagon pops off of it and the IV stand comes crashing down forward, right at the baby! I catch the stand about an inch above her head – but break some of the tubing in the process!! At this point it’s IV fluids that are leaking everywhere. I grab the baby, ditch the wagon in the hallway and run into the elevator to head back up to our unit (once again we’re on the second floor and our unit is on the third). As I get out of the elevator it’s no longer leaking fluids, it’s leaking blood!! I guess once the pressure of the fluids wasn’t pushing in that her heart decided to keep pumping blood out! So we get to the nurses station and I’m pinching the tubing with my fingers, had a pool of blood in my hand and a trail of blood splatter behind me. Holy Moly! Now I’m kinda freaking out, but Penelope has no idea what’s going on and is just waving at everyone while nurses are scrambling to get towels to soak up the blood.
One nurse, Carol, who is totally awesome and was a HUGE help to us when Penelope was in really bad shape, jumps into action. She starts dishing out orders, clamps the line and has our ‘actual’ nurse get some caps and switch things out. At this point my heart is going a million miles an hour, I have blood all down the leg of my pants and all I’m thinking is that I really, really, really hope that she doesn’t have to get her IV replaced. So far, in our hospital experience, they’re not too good getting an IV started for Penelope. Fortunately, they were able to quickly flush it, start a new tube on the existing IV and all was well. Big sigh of relief there!
All’s well that ends well, so we’re good to go. As you can see from the pic, Penelope was none the wiser, all smiles, and is now sleeping.
Just a quick update, have a great weekend!
Best
Aaron




Another day in the life of Miss Penny… She goes through so much and yet has the most gorgeous smile! What an amazing little girl! Our thoughts are with you! Glad Carina got a little break
Just dropping a note to let you know that you continue to be in our thoughts and prayers. We have been following Penny’s journey for a few months now, and we’re so inspired by the each of you. We pray that the prayers of family and friends are lifting each of you as you navigate your way on a path toward complete healing for your darling girl.
God Bless You,
The Hearnes
Sporting Love & Hope
http://www.facebook.com/group.php?gid=150437009057&v=wall
Oh my Gosh, there is nothing that could have prepared either one of you for those experiences. They were different and yet somewhat similar. I don’t know if I would have, or could have handled either situation as well as you two did. I spent a little time playing a trivia game online with Carina last night. Showing some of my useless vast array of aquired knowledge(and a little useful stuff too!). I love you bunches!
Holy Moly, Aaron. Between Penelope squirting blood from her chest for Carina and shooting blood through her IV for you… You two are going to end up with PTSD! I’m so glad that she seems oblivious to it all, but I’m sure that doesn’t make it any easier for you two. Saying prayers for Penelope, and you and Carina daily. I love you!
We love you kids so very much. I live 5 miles from childrens hospital. Just down the 805 & University. If you all need a break and want to hang with family, just let us know, or if you need us to bring you anything either for you or Penny. We’re here for you.
I have some fundraisers to help out with all that is going on. 2 the end of this month and one in July.
Blessings to you all.
Hope aka. Dee
Your little girl is just precious – My family and I have been following Pennys story for months now and we will continue to send thoughts and prayers your way!
P.S. Thank you for updating this page as often as you all do – I know it must be tough in more ways than one but I think I can speak for many when I say that we all appreciate it very much – Her story is truly touching many lives
That was scary to read, but Aaron your quick on your feet and I knew the story was going to lead to something good
… On a lighter note, she looks so darn cute in that picture… Sorry I haven’t called in a bit, just been super busy with work and school… Miss you guys tons and can’t wait to see you… Give Penny kisses for me XOXOXOXO
I haven’t been to your site for a while so I’m very glad to hear all the positive news (even with the road bumps along the way). Her spirit is so wonderful and you have both been so strong, you’re all an inspiration.